Lupus is a kind of autoimmune disease, in which a person’s immune system creates antibodies that attack their own body tissues. A lot of the symptoms are quite similar to other diseases, making its treatment rather difficult, especially as there is no single test that can categorically diagnose lupus.

Lupus is usually distinguished by a red rash that appears on the nose and cheeks and sometimes over the whole body. When exposed to the sun, the rash will get worse. Unexplained bouts of fever sometimes may attack, and painful arthritis of the joints can also be a problem. The fact that lupus symptoms can constantly change is an obstacle for in the way of its treatment. Patients may suffer hair loss, mouth ulcers, headaches, chest pain and even depression with lupus. It is hard to say how many parts of the body will be affected by lupus- sometimes it is only one part, like the skin, and sometimes many areas are affected, making the diagnosis and treatment of lupus troublesome.

Systemic lupus can affect primary organs in the body like the lungs, which develop an inflammation in the lining, leading to chest pain. If this is ignored, it can eventually deteriorate into pneumonia. Doctors often can only treat the symptoms of lupus, as it may be too hard to diagnose the real cause. Kidneys can be affected by lupus too, the and only signals being swollen ankles and an abnormal blood or urine reading. The heart, blood vessels, and the nervous system are also targets of lupus(

Usually, the treatment of lupus is the same as the treatment of corticosteroids. Patients are always be asked to pay close attention to any sign of flare-ups, and immediate precautions like the use of a strong sunscreen and the reduction of stress are all used in the treatment of lupus. Pregnant women have to be especially careful and must quickly treat lupus flare-ups to avoid miscarriage. Men with lupus should test their PSA(prostate-specific antigen), and women should have regular breast and gynecological tests. Both should have regular blood pressure and cholesterol levels checks.

Is there a natural remedy for lupus( Can natural herbs be used in the treatment of lupusc Doctors often advise patients to add vitamins and minerals such as calcium, vitamin D and folic acid to their medication as a natural remedy for lupus. Exercise is also a good natural remedy for lupus as it reduces stress levels and in turn mitigates any flare-ups.

The Medical University of South Carolina, in collaboration with the Research and Education Foundation of the American College of Rheumatology has studied the effectiveness of treating lupus with Vitamin D therapy in patients with Systemic Lupus Erythematosus (SLE) and the study is continuing. The Lupus Foundation of America (LFA)does a lot of research into the causes, prevention and treatment of lupus( as well.

2 thoughts on “Lupus Foundation Of America Lfa

  1. Anonymous

    What criteria did the LFA have in estimating the prevalence of American Lupus?
    I’ve always wondered what criteria the Lupus Foundation of America used to create their “1.5 million people country-wide” estimate. Especially, since it seems to run contrary to almost every other major study conducted on the subject. Since Lupus is considered “the disease with a thousand faces”, wouldn’t it be particularly difficult to estimate a condition, with so many symptoms, over the phone. Fatigue, joint pains, and muscle pains are symptoms of a whole slew of medical problems. Couple that with a positive ANA (which occurs in twenty percent of the healthy population) and you’re bound to skew numbers. Whenever someone presents with symptoms even remotely suggesting Lupus, many doctors and even patients are quite quick to jump on the Lupus bandwagon. This seems to suggest a specific mind-set and medical culture surrounding the disease. Perhaps, that’s why the television show “House MD” always seems to be poking fun at the patients and medical staff who, with every other potential diagnosis, suggest Lupus. General estimates seems to be in the range of a prevalence of 300,000-500,000 people, yet the LFA has almost tripled that. Why is that?

    1. Linda R

      Most of the lower estimates are older estimates.

      The reason newer numbers are higher is because doctors are better at diagnosing lupus now. Additionally, if you developed lupus 30 years ago you could be expected to die within 5 years. Now you can expect to live a relatively normal life span. So there are more lupus patients who have been properly diagnosed and more who live longer after diagnosis.

      The LFA did an extensive phone survey, much like other phone surveys, calling a large number of people randomly and then extrapolating the data to the general population.

      Some diseases are reported to the government (CDC) including the big killers like cancer and heart disease as well as contagious diseases. There is no reporting mechanism for lupus. Some researchers have based their data on hospital discharges which can be misleading: not all lupus patients get hospitalized, the discharge may say something other than lupus, for example, pericarditis and pleurisy even though it was the lupus that caused the problem in the first place.

      The reason lupus is called the disease with a thousand faces or the great imitator is because it manifests differently from patient to patient and because the symptoms are similar to many other diseases. This is one of the reasons it is so difficult to obtain a diagnosis. On top of that there is no definitive biomarker for lupus.

      The immunofluorescent pattern seen in the ANA is more significant than having a positive ANA in the first place. 10 million Americans have a positive ANA. 5% of lupus patients will have a negative ANA. A speckled ANA is indicative of the probability of lupus, while other patterns may indicate scleroderma or Sjogrens.

      And contrary to your opinion that doctors and patients are quick to jump on the lupus bandwagon, the opposite is true. The majority of lupus patients take 3-5 years to obtain an accurate diagnosis and see as many doctors along the way.

      I would be interested to know what just half a dozen of your “every major study” sources.

      And I would really like to have a reference (other than your own perception) that “Whenever someone presents with symptoms even remotely suggesting Lupus, many doctors and even patients are quicke to jump on the lupus bandwagon.”

      Not only do I have systemic lupus with very major organ involvement that nearly killed me in 2003 and went undiagnosed for 38 YEARS, I also work with lupus patients on a daily basis.

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