Sarcoidosis (also called sarcoid or Besnier-Boeck disease) is a disease due to inflammation. The disease can attack any organ of the body in any location. The disease most commonly involves granuloma formation in the lungs. Other commonly involved organ systems include the lymph nodes (especially the intrathoracic nodes); the skin; the eyes; the liver; the heart; and the nervous, musculoskeletal, renal, and endocrine systems. It is characterized by granulomas (small rounded outgrowths made up of blood vessels, cells and connective tissues) that can produce many different symptoms. It is generally a chronic disease, lasting for several years or a lifetime. These tiny granulomas can grow and clump together, making many large and small groups of lumps. If many granulomas form in an organ, they can affect how the organ works. The cause of sarcoidosis is unknown. Symptoms can occasionally appear suddenly but more often than not appear gradually. When viewing X-rays of the lungs, sarcoidosis can have the appearance of tuberculosis or lymphoma. In the majority of cases, these granulomas clear up, either with or without treatment.

Sarcoidosis almost always occurs in more than one organ at a time. Sarcoidosis is not a form of cancer. If you have no signs or symptoms of sarcoidosis or only minor ones, a wait-and-see approach may be appropriate. There are a variety of granulomatous disorders that closely resemble sarcoidosis, including tuberculosis. Pulmonary sarcoidosis can cause loss of lung volume (the amount of air the lungs can hold) and abnormal lung stiffness. It is more commonly seen in people of African descent than Caucasians, primarily people of northern European descent in the latter case. It occurs throughout the world in any race. The close resemblence to tuberuculosis has led to speculation that sarcoidosis is due to an infectious organism. It is most common in adults between 20 and 40 years of age. Medications that increase the Th1 response, such as interferon, have been reported to trigger or exacerbate sarcoidosis. Recently, the gli -1 oncogene has been found to be highly expressed in persons with granulomatous skin diseases, including sarcoidosis. Granulomas can decrease in number if sarcoidosis is contained spontaneously or if it responds to treatment.

Causes of Sarcoidosis

The common causes and risk factor’s of Sarcoidosis include the following:

The exect cause of sarcoidosis is unknown.

A respiratory infection caused by a virus.

An unidentified toxic substance.

Environmental triggers.

An inherited or genetic factor.

Exposure to toxins or allergens.

Noninfectious agents, such as aluminum, zirconium, talc, pine tree pollen, and clay.

Symptoms of Sarcoidosis

Some sign and symptoms related to Sarcoidosis are as follows:

Shortness of breath.

Skin problems.

Fever.

Lung problems.

Mild chest pain.

Myositis.

Weight loss.

Small red bumps on your face, arms or buttocks, a condition more common in blacks than in whites.

Dry cough.

Night sweats.

Treatment of Sarcoidosis

Here is list of the methods for treating Sarcoidosis:

Sarcoidosis is usually treated with steroids initially.

Drugs called corticosteroids are the most common treatment used in fighting sarcoidosis.

Radiation has also been used to treat treatment-resistant cutaneous lesions.

Patients may be advised to follow a low-calcium diet, and to avoid sunlight and vitamin D supplements.

If prednisone fails to improve symptoms, other immune-modifying agents such as methotrexate, azathioprine, ciclosporin, hydroxychloroquine or chlorambucil may be used.

Antibiotic therapy has been reported to be effective for lung, lymph and cutaneous manifestations of sarcoidosis.

Eye and skin lesions may be managed with topical corticosteroids (eye drops, creams or injections). Laser surgery has been used in treating disfiguring skin plaques and lupus pernio.


46 thoughts on “Lupus Causes And Symptoms

  1. Me

    does pheochromocytoma cause hairloss? (have other symptoms. doctors or nurses PLEASE answer!)?
    doctors or nurses, please take a look at this and tell me if you think it might be possible that i have a pheochromocytoma. i know it’s rare however…

    at around 17 i had an xray done because i started getting bad joint pains. they saw a mass on my adrenal glad, but never investigated it. then i developed inappropriate sinus tachycardia. i was given atenolol, and developed the very rare symptoms of lupus. i was on that for 5 years and was told by doctors that my lupus symptoms were all in my head and that i was crazy. i went off the atenolol and all the symptoms went away. i was diagnosed with drug induced lupus.(this is apparently genetic. my grandma got it from beta blockers too) For the latter 3 of the 5 years, my hair began to fall out by the masses. The first 2 years on the atenolol, it did not fall out at all.

    i’ve been off the atenolol for almost a year and my hair is STILL falling out by the masses. most of my lupus symptoms are gone. occasionally i’ll get tingling in my hands and feet, or joint pain. once a month maybe. the tingling in my hands and feet has become more frequent in the last month or two. once every 1 or 2 weeks, i’ll have it happen on and off for a day or 2. since i’ve been off the beta blockers for almost a year, i’ve had the inappropriate sinus tachycardia for a year. i have all the symptoms of it, and an electrocardiologist confirmed it today with an EKG and listening to my heart. He also gave me an event monitor and said to come back in 3 months. He said surgery won’t help me, and medicine won’t help much, but gave me a calcium channel blocker to help.

    My question is this…being that my hair is still falling out and we can’t find any apparent reason, i have tachycardia (although my mother and grandmother had it too. not sure what type), fatigue(probably from the tachycardia, i dont know) and the tingling in my hands and feet STILL, even a year after the lupus is supposed to be gone…could this all be caused by a pheochromocytoma? should i have that mass on my adrenal gland checked out to make sure that’s not what it is?

    i believe the xray had said it was 2 centimeters big. that’s small, but i think on your adrenal gland, that’s sort of big..

  2. Christina

    Do my symptoms relate with hypermobility?
    I am 15 years old. I have been sick for two years. I miss a lot of school with medical permission. Lupus runs in family, and rheum. thought I might have it. I have not been tested by any bloodwork except my elevated sed. rate. I was just diagnosed with hyper mobility syndrome and patellofemoral syndrome (chondromalacia patella).

    My symptoms include, ofcourse, pain in joints and bones…length of arm, leg, feet, toes, hands, fingers, wrist, elbow, shoulders, everything except hips.

    I have gastritis and erosion, but biopsies show nothing.

    I am immune to most medicines, unknown cause.

    My symptoms of illness include: fevers, frequent illness, headaches and migraines, crushing pain in chest, pain in chest, pain in ribcages with trouble moving and breathing, scoliosis, shocks in spine with make my legs collapse and I fall, shooting pains in stomach and chest to brain, fatigue, always sleeping, rashes, in sun get rashes on chest and neck. And more personal/serious ones.
    Oh, I also get frequent sore throats, nose bleeds (in 2006, 1-2 per day)=anemia, nasal sores, and vomitting.

    I am going back to school in a week. I was prescribed physical therapy and an anti inflamatory. I want to make sure my medicine will work (Meloxin or something?), beacuse I missed too much school on medical excuses, and I can’t do it this year. I want to know if I got the right diagnosis ? And if you have these symptoms too with HMS?

  3. bill b

    Is it common to gain substantial weight if you have lupus (ELS)?
    I have a preliminary diagnosis of lupus (ELS) and I am wondering if it causes weight gain as one of the side effects? I am aware of most of the symptoms but unsure about the weight gain.

    1. LuckyLady

      Lupus is one of the strangest things in the world. The medical literature says wt. loss is common – especially BEFORE the steroids. But there as many different symptoms of SLE as there are people who have it. It affects no two people in identical ways. If you are not doing anything external to cause the weight gain, it could be the SLE. Lupus can screw up any of your functions, including pituitary function or thyroid – which could affect weight.

      Let me give you this insight, just in case you do have to go on steroids: They make it difficult to lose weight. they make you look like you’ve gotten fat, but it might just be the swelling that goes along with high dose. Keep eating a healthy balanced diet, within your restrictions, and when the dosage goes down, so will the swelling.

      At first, I would go ahead and eat whatever – like “it didn’t matter, I’m fat anyway”, then later would have to lose the extra wt. Over the years I have learned to keep doing the right thing and let the side effects come and go. My wt has stabilized now.

      Good Luck – I really mean it.

  4. angl2839

    Can Lupus cause Multiple Sclerosis?
    Just wondering if that is possible. I was diagnosed with Lupus about a year ago, and I am having alot of symptoms like eye pain, muscle weakness, confusion, dizziness, etc. which are seen in MS patients so I was just wondering what someone else thought. Thanks!

    1. christibro40

      well you can have both but it is rare. however, Lupus can attack the central nervous system, mine does, and I have a lot of MS features, the differance is in MS the mylan sheath gets destroyed in your brain and spine, in Lupus it does not. however, the eye pain, confusion, dizziiness, weakneess falling are features of both. Ive been tested for MS 3 times, during my course with Lupus, but its not there. So they consider my Lupus mainly Central Nervous System Involved. which includes seizures, migranes, and all mentioned above, and falls.

    1. mgnysgtcappo

      I love it when people come in here and try to sell their so called homeopathic remedies. Every scientific study has proven beyond a resonable doubt that they don’t work yet still they are able to get people to buy their snake oil. Sorry, had to get that off my chest from the last answer.

      The actual cause of Lupus isn’t truly understood. Most doctors feel that genetics as well as environmental factors play a role in Lupus. There have been numerous studies but none are definitive. Lupus is an auto immune disease wherein the body’s immune system attacks both unhealthy and healthy cells. This causes inflammation and swelling in the joints as well as kidney, heart, lung, brain, skin, liver disease as well. Lupus is a systemic disease, meaning that it can attack any system of the body. Each Lupus patient can have a myriad of symptoms and different levels of involvement. Some have relative mild symptoms while others become life threatening. Lupus Nephritis (where lupus has attacked the kidneys) is prevailant in 50% of Lupus patients. Again the severity of Lupus Nepritis depends on several factors. Some people only have mild kidney problems while others need dialysis and transplant. The same is true for all other systems of the body. Fatigue is also a major symptom of Lupus. People with Lupus report having times of extreme fatigue where they can’t even get out of bed. Additionally, depression can also be a major symptom.

      Treatments for Lupus include steroid therapy either oral (Prednisone) or intravenous (methotrexate pulse). Plaquenil (antimalirial) is also still used although it’s use is antiquated. Cellcept (antirejection medication) is used to lower the immuno response keeping the immune system from attacking healthy cells. (Myfortic is the newest oral medication on the market, it is basically time released Cellcept which can help with any gasterointestinal issues from taking Cellcept).

      The most recent thearpy utilized in severe organ involved Lupus is Rituxan, an IV chemothearpy which iradicates B Cells and calms the immunoresponse.

      I hope this has been helpful

  5. sondra w

    hello i have sle(lupus)for 5 yrs now, do my sypmtoms mean my lupus is active?
    I am the typical story, I suffered for one year with doctors disbelief that something was wrong even after the rash broke out covering almost my entire body, it wasnt until I ended up in the ER for two weeks when I finally got the definete answers to my elements. I have SLE,discoud lupus, now lupus nepritis and so on. Now my first indication that something was wrong with me was joint pain(i thought carpool tunnel), but the pain eventually spread everywhere and then the fatigue, and then swollen joints and raynuads syndrome,so of course then fibromayglia. When I left the hospital I wasn’t as fatigued but the pain never went away nor the joint swelling, just a differnet joint everyday,so for five yrs I’v been on oxycotin and percocet to live a more pain managed life, but sometimes my symptoms get even worse( how could they?) they do basically my joint pain becomes every joint, the pain medicnes stop working, I cant walk without a walker or I walk very slow and painfully, so I tell my doctor as always andwe run more labs, platlets at 60K,but not low enough for her to be concerned shes waitin for mor test results, she says that although I have these sypmtoms including a lovely rash, that my lupus may not be active. Please anyone is this BS or what? Can you have what is obviously a flare and it not be your lupus causing it? right now i am on imuran and plaqnil and i was on predinose for 4 years straight and finally said no more because it wasnt controlling these elments, she wants to but me back on it to bring my platlets up, but i know once i go off they go down again, I have been on every medicatio for sle and none have changed anything, I have had rituxan injects no chnage so last year we tried it again and i had an allergic reaction. She doesnt want to try cytoxan because she says it doesnt help with swollen joints fatigue or pain, does any one know or have any idea? please give me your suggestions, thank you and sorry for the spelling my hands hurt and keep missing the letters.
    i’m sorry i forgot to mention , i’ve tried cellcept for two years no help sp they took me off, methotrayate for did not help either, we did the rituxamab once it did nothing so we tried it again a year later and i had a severe allergic reaction so no more of that. I am on 200mg plaqnil 2 times a day and imuran3x a day, i also do accupuncture thru kaiser but only for two months now and start biofeed back next week. I have been on permanant disability Social security since i got lupus in 2003(it took 18 months),I’m 34 this happened when i was 27-28. All your answers have been great, if my doctor would try the cytoxan i would be more than willing she doesnt think it will help with the joint pain and swelling or the fatique, I just had an Mri for the headaches today so maybe that will show them something.

  6. Anonymous

    Could it possibly be Lupus?
    I’m very tired of being treated as though I’m just going nuts. A hypochondriac in a sense. I’m not…I’m sick. Without much to back up what is causing it. The symptoms mainly started when I was around 18…I’m 24 now. I’ve been to the doctor many times being told the same thing. I’m perfectly fine. One doctor finally took into consideration I had a list of symptoms too long for my age and sent me to a digestive specialist. I wasn’t able to continue seeing the specialist, but from the two visits I was able to attend, he determined I had GERD. But I just keep getting worse. It’s not just my upper digestive system, it’s my entire digestive system. Nothing seems to work properly. I’m vomiting in the mornings from acid and bile building up in my stomach throughout the night. I can hardly eat anything without feeling nauseated afterward. My stool varies in color and texture. Some days it’s near normal, others is sticky, others it’s like water. I stay pretty bloated the majority of the time. So bloated and gassy that I have to where a pant size larger than usual. I have to pee once or twice an hour. I get chest pains that are more than likely associated with pain in my esophagus. It’s pretty deep and aching.

    Aside from my digestive problems, just last year I started developing eye and skin problems. I’ve never had any problems with my eyes. Never needed glasses. I’ve started having static like vision (visual snow), I sometimes see bright spots (seeing stars), I’ve noticed an increase in floaters in my vision. Some have came and gone…others are still around. I feel what feels like sparks bursting in the inner corners of my eyes several times a week. I see ghosting. Distant objects are now slightly blurred and my eyes tend to stay dry. All of this developed within the last year. The eye doctor said I had developed an astigmatism. Seems like more is going on than that…just in the last 5 months since my visit to the eye doctor…the symptoms have worsened. Seems a bit quick and much to just be an astigmatism.

    My skin problems started developing around the same time my eye troubles started. I started out just getting a rash on my side. It wasn’t raised…more like a big red blotch. Didn’t itch. I didn’t pay much attention to it until I noticed over a week period it had come and gone in the same spot 3 different times. A few weeks later I started breaking out in hives. They started just on my thighs, then progressed to my entire body over time. They wouldn’t go away unless I laid down, and even then it took hours before the majority would cease. Hives became an ongoing problem that randomly popped up for about 8 months. I could never find a trigger for them. Some days I’d be working and notice them, others I’d wake up and have them…indoors, outdoors, no food allergies, no medication…stress…nothing. I could never find anything. I haven’t really had an outbreak in hives now for about 3 or 4 months. Instead I’ve been getting itchy skin (not dry skin), and more red blotches (not raised) on my skin. First they were mainly coming on my chest, then I started getting them on my hands, feet, stomach, legs…wherever. They seem to start on my chest. Sometimes they itch…sometimes they don’t.

    My symptoms all come and go…aside my eye problems. The dryness in my eyes come and go…but the rest stay pretty constant. But my digestive problems and my skin problems come and go. I have no thoughts as to what may trigger these problems.

    I know that is a lot to read, so if you’ve done so, thank you. Aside from all of that, I stay tired, I have minor body aches that come and go. Especially in my arms and in my knees. I find some days I can’t think as clearly as others…mild confusion occasionally. I have good days and just down right nasty hateful days. Dunno why. I stay depressed for weeks at a time. I went to a State Park just two days ago. It was a cold but sunny day. First time I’ve really been out in the sun that long in months. That night I noticed the butterfly rash across my nose and cheeks. Not a sun burn. It faded yesterday for a few hours and today it’s darker again. This is what made me begin thinking…could this be Lupus? and yes, it does run in both sides of my family. Lupus and Leukemia both do. I’ve had several people tell me even on good days…”You don’t look so good” My last employer told me I wasn’t working out because I just seemed too drained all the time.

    I am uninsured now, and I’m not sure how I would get tested for Lupus…or even how they test for it at all. I’ve read some websites about Lupus, it just seems like such a complicated disease. Any thoughts? Thanks again.
    I forgot to mention my miscarriages. I’ve had 4 healthy children, yet before and after my successful pregnancies, I’ve had 6 miscarriages without a reason being determined. Dunno if that has any relation to this…but thought I’d add it.

  7. angelinaismywifey

    can a lupus rash come and go?
    like its under the skin….. looks and feels more like a circulation problem…. i have all other symptoms of lupus and this rash that wont stay long enough to show my dr! its worse at night and sometimes causes stroke like symptoms….i feel like im going crazy cuz other people cant see it like i can…..
    -weight loss,malabsorbtion
    -raynauds syndrome
    -swollen lymph glandsEVERYWHERE
    -thickened skin-feet&hands(poss associated scleroderma?)
    -pale skin&hyperpigmentation
    -swollen extremities, joints(stiff neck, knees,ankles,clavicles,,coccyx
    -lightheadedness
    -slow healing wounds
    -dry mouth&skin
    -constipation/diarreaha
    -mucus in stools&blood
    -inflamed painfull veins that buldge&get hot to touch sometimes bringing hives
    -itchyness
    -weird scar type bumps on face & back
    -chest pain&shortness of breath
    -memoryloss&confusion
    -blanching blood vessel dots
    -dry scaly skin that beaks&wont heal
    -hairloss ETC!!!
    and when the veins in my neck budge& throb sometimes i get dizzy&lethargic like w/ sudden sever headache and weakness—feels like a mini stroke!

    thanks for your help drs seem lost-bloodwrk normal,tested neg for R.A., LYME, STD’S,CELIAC,PARASITES, PLUS alot of general cbc marker tests—seems im in perfect health lol

    1. elpi

      There are definitive blood tests for lupus. Don’t diagnose yourself,.
      I have had it for years (SLE), and haven’t had any major organ involvement. Everybody is different.
      See a rheumatologist and remember, stress will cause what you are experiencing, a flare-up.

  8. poobear

    Does anyone out there know anyone with Lupus?
    My Mom has been diagnosed with Lupus 10 years ago and I have seen her go through many horrible symptoms. Her lupus has caused her to have diabetese & hypo thyroid desiese. The scariest of these sympyoms are her parinoia. She has now turned on me, thinking that I am capable of all kinds of horrible things. She is trying to poison my kids against me & my husband. She has caused me great disstress & heartache. Should I cut off all ties with her from me & my kids. Please understand that this has gone on for some time now & I’m just tired. The Docs had her on Halodol before, but she doesnt want to be labled as paranoid so she quit taking those meds. Any helpful advice needed.

  9. Mary

    Can Lupus affect the brain and be confused for MS?
    I was diagnosed with Lupus and now they are seeing Dysmyelination in my MRI, and I have symptoms that can be seen in both Lupus and MS. But I never read anything about Lupus affecting the brain and causing dysmyelination….was I not diagnosed right?

  10. Becca

    Does anyone with Lupus suffer from hip pain?
    This question is about my 10 year old son.
    He has had extreme hip pain for almost a year and it has now spread into his lower back. He does have a positive ANA test but all others were negative including those for arthritis.
    I have had him to many specialists and they keep saying it is an auto immune problem but can not pinpoint what it is. They think Lupus may be possible cause of his symptoms and family history of it.
    Does anyone with Lupus suffer pain in the hips and back?

  11. Anonymous

    Can someone thoroughly explain lupus symptoms?
    My doctor said I could have an autoimmune disease. I think most of the symptoms are in my head. They said this because they couldn’t find out what’s causing my chest pain and shortness of breath. maybe 3 days later, I started getting severe back pains, and minor pains in my arms and legs. I also don’t understand what they mean by fatigue. I’m tired some times but most of the time I’m up joking and laughing. My back pains are fine in the morning but starts to occur as it gets closer to night. I really need help because it’s driving me crazy doing research and just thinking about it. Plus I won’t know my lab results until 2 weeks from now

    1. Linda R

      First, autoimmune diseases often come in overlap, meaning it you have one you probably have more than one.

      With lupus, symptoms vary widely from patient to patient. 90-95% of us have joint pain and inflammation at some point. Many have pain when they take a deep breath. Most of us have times of extreme fatigue which means you are so tired you can barely take care of yourself. There are others, but they are not the most common.

      Your symptoms could be caused by a variety of different diseases or conditions. Lupus is not easy to diagnose. There is no single labtest for it. Work with your doctor until you find out what is causing you to feel so bad. Don’t give up. It may take some time.

  12. J

    Is cracking skin tissue on the feet a possible symptom of lupus? what could cause this?
    I don’t really wanna freak out, and I don’t think my mom has lupus (of course I have no way of knowing now), but she was stating that the skin tissue on the bottom of her feet was cracking and breaking, creating almost what are cuts all over her feet. She said she is concerned that if this is apparent in other tissue she may have lupus. What could cause something like this sort of reaction to skin tissue? Is cracking skin tissue a symptom of lupus? She has degenerative disc disease if that information is good for evaluation.

  13. Jeanie P

    Can lupus cause your period to get wacky?
    I come from a family with 2 generations of SLE, my mother and my grandmother were diagnosed when they were about my age.

    In regards to the “wacky” period, let me preface this by saying that I used to be able to set a clock by my cycle — every 28 days.

    Two cycles ago my period was 4 days early.
    My last cycle was a week late.
    My period is now a little over 2 weeks late, with multiple (6) negative home pregnancy tests.

    Has anyone with Lupus ever had an experience where you missed/had a late period when you started to get symptom of Lupus? I also have noticed my joints hurting more in the past few months, and I seem to be more tired. Both of which I know are symptoms.

    I know I need to see a doctor, but it would be nice to know if someone else has had a similar experience.

  14. bmhubs

    Does anyone know what might cause these symptoms?
    So in september of last year I became ill, I was tired all the time, i couldn’t sleep at night at all, in the morning after maybe 3 hours of sleep I would wake up and my body felt stiff. This was a common occurrence since august and then at the end of september I had what we are calling episodes where I took a nap and when I woke up I was dizzy (felt like the room was spinning), I couldn’t stand up without losing balance and I couldn’t speak. I knew what I wanted to say but I couldn’t get the words to come out and when I did I would stutter, also my legs and wrist and hands would go numb and tingle and sometimes just throb in pain. After going to neurology and being admitted to the hospital to have several test done the doctors came up with nothing.
    Recently I have been having new symptoms, my hair is falling out, and I have been having short headaches where I get sharp pains in my head for a few minutes, and I get these painful sensations in the back of neck right at my hair line that feels like pressure… I would really like to know other peoples thoughts on this because the doctors have no clue. They were thinking MS, or Lupus but the lupus test came back negative and the only effective test for MS is a spinal tap and they won’t do it. I have a doctors appointment Jan 9th and I would like some ideas to throw out to the doctors.

  15. bmhubs

    I have these mysterious symptoms, do these ring a bell with anyone??? can really use some advice…?
    Does anyone know what might cause these symptoms?
    So in september of last year I became ill, I was tired all the time, i couldn’t sleep at night at all, in the morning after maybe 3 hours of sleep I would wake up and my body felt stiff. This was a common occurrence since august and then at the end of september I had what we are calling episodes where I took a nap and when I woke up I was dizzy (felt like the room was spinning), I couldn’t stand up without losing balance and I couldn’t speak. I knew what I wanted to say but I couldn’t get the words to come out and when I did I would stutter, also my legs and wrist and hands would go numb and tingle and sometimes just throb in pain. After going to neurology and being admitted to the hospital to have several test done the doctors came up with nothing.
    Recently I have been having new symptoms, my hair is falling out, and I have been having short headaches where I get sharp pains in my head for a few minutes, and I get these painful sensations in the back of neck right at my hair line that feels like pressure… I would really like to know other peoples thoughts on this because the doctors have no clue. They were thinking MS, or Lupus but the lupus test came back negative and the only effective test for MS is a spinal tap and they won’t do it. I have a doctors appointment Jan 9th and I would like some ideas to throw out to the doctors.

  16. marie

    Can lupus cause Estrogen levels to rise?
    I have been worried about lupus for the last couple of months as my grandmother has it. I have not been tested or diagnosed yet, but have a couple of symptoms such as raynaud’s phenomenon and rosacea, among other things.

    For the past couple of weeks, I have felt like my estrogen levels are rising… my breasts seem to be a little bigger and sore, my skin looks better (not really complaining :D), I have been moody… basically I feel like I did when I was taking birth control over a year ago. I am NOT PREGNANT, and I am 20.

    Basically, could lupus cause an explained rise in estrogen? What could?? I am starting to get worried!

  17. Anonymous

    Does anyone have lupus?
    Hi, I’ve had lupus for almost five years now. It’s been in remission for four years, but the past few days it’s been flaring up again and I’m scared and I’m stressed and I’m nervous. I blame myself. For a month there I convinced myself, partially that I didn’t need meds, that I was cured. I even considered that I was mis-diagnosed and it wasn’t lupus, cause I hadn’t had any symptoms for so long.

    It was nice to feel normal. To not have to take handfuls of pills every day. It was nice to have extra money, my health insurance doesn’t really help with anything anymore.

    I just want it all to go away, I want to be normal. I don’t want to have to worry about this shit.

    I’m scared that I won’t be able to have kids. I’m scared to even think about trying. Cause even if I am able to have kids, my children could be born with lupus or could be born in pain as a symptom of neo-natal lupus. I’m scared to pass this on.

    Anyways, I’ve never met anyone else with lupus or anything similar. I don’t like talking about this stuff with anyone I know because I don’t want to worry them or make them feel bad for me. So I was just wondering if anything knows what I’m going through, and can relate-at all. I’m having a hard time right now.

    Thanks

  18. American Beauty

    I need help from someone who knows a lot about Multiple Sclerosis.?
    Hi there, so back at Christmas time I went through some serious problems.

    It all started with some pain in my back that eventually spread to my chest/ribs area and then all of my muscles began hurting. I could barely walk.
    Then I couldn’t pee. I had urinary retention and had to wear a catheter.
    Christmas day, I was out. I just slept and was in constant pain.
    I had dizziness and vertigo. The room looked like it was spinning.
    My neurologist admitted me to the hospital. While I was there, I had MRIs, CAT scans, spinal taps, and an annogram (sp?)

    They found a lesion in my cerebellum. While I was in the hospital, I couldn’t walk well at all. The lesion affected my motor abilites.

    I was taken out of the hospital and I recovered quickly. The only symptom I had was whenever I leaned my head downwards, my body would vibrate…it was odd. I think it had something to do with my spine.

    The doctors are still scratching their heads. They tested for MS and Lupus but the tests were negative. Can simple viruses cause symptoms similar to autoimmune diseases?

    I’m 20 if that helps.

    Thanks.

    1. pcheesewhiz

      Yes, there are two viruses that can cause symptoms that mimic MS; they are human T-lymphotrophic virus type 1 and human immunodeficiency virus. I was told this at the Cleveland Clinic where I was finally diagnosed with MS.

      Did your neurologist do more than one MRI separated in time? It can take a long time for the lesions that are indicative of MS to show up even after the onset of the disease. At least that is what happened to me. And MS is so very difficult to diagnose since none of the tests give the docs a definitive diagnosis. Sometimes the lesions are so small that they just don’t show up on the MRI.

      Have you been tested for Lyme disease? If you have not been, it would be a good idea for you to do so.

      I sure hope that you get a resolution to this asap. The very best of luck to you!

  19. wingsovgrace

    Have you been diagnosed with drug induced Lupus ?
    !0 years ago began having problem with elevated blood pressure. Was treated with the usually prescribed meds. Within the past ten years I have had a variety of unusual and often preplexing symptoms that the doctors couldn’t find good answers for. Lots of guesses and lots of unsuccessful treatments and increased frustration and misery until recently. The diagnosis is drug induced Lupus and it is believed to be caused by my blood pressure meds. Bingo. The symptoms have developed over the same period I’ve been on the meds. My question is: Any known effective alternatives for Blood Pressure Control? Anyone else with Lupus have bizarre skin and hair folllicle issues? Any one know a reputable doctor in Kansas City Missouri to advise on alternative treatments? Any one know of a web site to purchase alternative B/P treatments that you or someone you know have had personal experience with? Are there suggestions for a great support website for Lupus?

    1. Healing Oneself

      Hi WIngsOfGrace

      Here are some ideas to heal the issue. Also learning about detoxifying the blood by doing colon and liver cleanses will change your health forever.

      Cause
      Food allergies (there is a 100 percent correlation between lupus and food allergies), rheumatoid arthritis, other connective tissue diseases, parasites, candidiasis, bowel problems, and digestive enzyme deficiencies can create symptoms that mimic or exacerbate SLE. Migraines, epilepsy, and psychoses must also be ruled out before a proper course of treatment can be decided upon.

      Both forms of lupus primarily strike young women (90% of cases) and young children.

      The drugs hydralazine, procainamide, and beta blockers can cause false-positive readings of SLE, and can also produce a lupus-like condition that disappears when the drugs are no longer taken. Birth control pills and environmental stresses can also exacerbate lupus symptoms.

      ——————————————————————————–

      Natural Cures

      Diet: Eat an organic, whole foods diet. Also avoid overeating and limit your intake of dairy, beef products, and polyunsaturated oils. Also screen for food allergies and avoid all foods to which you are allergic or sensitive. Increase your intake of vegetables, especially green, yellow, and orange, and consume non-farm-raised fish several times a week.

      Herbs: Supplementation with Swedish bitters with each meal can increase hydrochloric acid production. Also drink an infusion of nettle twice a day. Other useful herbs include echinacea, goldenseal, licorice, pau d`arco, and red clover

      Hydrotherapy: Hydrotherapy is the application of water, ice, steam and hot and cold temperatures to maintain and restore health. Treatments include full body immersion, steam baths, saunas, sitz baths, colonic irrigation and the application of hot and/or cold compresses. Hydrotherapy is effective for treating a wide range of conditions and can easily be used in the home as part of a self-care program. Many Naturopathic Physicians, Physical Therapists and Day Spas use Hydrotherapy as part of treatment.

      Hyperthermia: Hyperthermia involves artificially creating fever in the body for the purpose of boosting immune function. Hyperthermia can be a highly effective method of eliminating toxins and heavy metals, as well as infectious bacteria and viruses that cannot survive in elevated body temperatures.

      *Purified water is essential for any hydrotherapy or hyperthermia treatment. Remedies for Treating Chlorinated Bath Water offers clear instructions and recommendations.

      Juice Therapy: Drink the juice of carrot, celery, flaxseed oil, black currant oil, and garlic.

      Nutritional Supplementation: Hydrochloric acid (HCL) deficiency is common in people with lupus, therefore HCL supplements with each meal is advised. Other useful nutrients include vitamin A with beta carotene, vitamin C and bioflavonoids, vitamin B complex, vitamin B5, vitamin B6, vitamin B12, calcium, magnesium, selenium, zinc, essential fatty acids, proteolytic enzymes taken away from meals, digestive enzymes taken with meals, and the amino acids L-cysteine, L-methionine, and L-cystine.

      Topical Treatment: PABA cream applied topically can help ease symptoms.

      Best of health to you

  20. mrs.sexyone

    what is lupus?
    Defining Lupus

    A chronic, inflammatory, connective tissue disease that can affect the joints and many organs, including the skin, heart, lungs, kidneys, and nervous system. It can cause many different symptoms; however, not everyone with lupus has all of the symptoms. Also called systemic lupus erythematosus (SLE

  21. Hope C

    Why do so many people resist the idea that food causes illness?
    If you tell someone to try a natural, organic diet free of preservatives and chemicals, they resist it, but will pop a pill of even more toxic stuff? I was in seriously poor shape two years ago with a multitude of problems, including lupus, rheumatoid arthritis, hidradenitis and thyroid problems. When I stopped eating processed food, and eliminated wheat, soy and eggs from my diet, the symptoms cleared up. I wonder why many people don’t realize the toxins that are in commercial meats, milk and processed food? All you have to do is read the label to see how bad it is!
    I enjoy a lovely diet of fresh, organic veggies, rice pastas, fruits, fish, seafood, rice, quinoa, millet, flax, nuts, seeds, berries, etc. I dont feel deprived at all. Its the toxic artificially enhanced stuff that I am refering to. My diet is much more enjoyable and :”comforting” to me now, and my 12 year old is thriving on it!

    1. Jadis

      AMEN!! If you can’t pronounce it, you probably shouldn’t be eating it.

      As to why people resist it, it’s a heck of a lot easier to pop a frozen dinner in the microwave than to cook from scratch….I used to feel that way, until we started eating cleanly….WOW. Food actually has TASTE! What a concept!

      Excellent post! Wish I could give you 10 points for it!

  22. kevin

    Do you think im having a lupus flare? i have many symptoms?
    Im a 17 yr old male and i was diagnosed with lupus about 3 years ago..since my diagnosis i haven’t really had any problems with the disease. For the past two weeks ive had severe loss of appetite, nausau, dizziness and some random joint pains. Ive only vomited two times in these last few weeks but the nausau and dizziness is really bothering me. I can’t tell if the appetite loss is what is causing the other symptoms, because i only eat occasionally because i dont feel good when i do eat. I am trying to make an appointment with my doctor now, but if anyone has any good imformation please let me know. Greatly appreciated.

  23. sante

    Was I misdiagnose? lupus or weak immune system?
    8 months ago while I was pregnant, I was diagnose with lupus. But the only symptoms that I am experiencing is joints pain and fatique some times. My doctor said that all of my organs are fine, I do not have a butterfly face neither skin problem. I wonder if the diagnosis was wrong.

    Does a weak immune system can cause thoses symptoms? I refuse to go on hormones treatments and trying to work on strenghtening my immune system first and hopefully reverse the condition.

    your experience and advise are welcome

    1. reifguy

      lupus is many stages ,and there is discoid and systemic lupus ,the immune system isnt weak in lupus its reacting in a way damaging the body and causing problems and inflammations ,if your diagnosis wasnt correct or u doubt it ,get a second opinion from a rheumatologist ,diagnosing lupus isnt easy in early stages and once diagnosed many go through remissions and relapse ,

  24. Pittlover

    Anyone have or had Lyme disease?
    Ive been in and out of the doctors for the last two years with extreme fatigue, tiredness and trouble sleeping. She tested me for all sorts of things to no avail! I went in again last tuesday for more tests because she thought I might have lupus, another symptom ive been having is multiple miscarriages which lupus can cause all of the above symptoms. And she also tested for lyme disease. Well no lupus thank god but I do have lyme disease. My questions are can lyme disease cause miscarriages? And also, once im done these antibiotics will all this tiredness and fatuige go away for good? Will these antibiotics finally make me feel better once the lyme is gone? Any info on lyme disease is greatly appriciated…your stories and symptoms and treaments and if it worked!!!! I hope now that ive found out whats causing it, ill feel like normal again!!!!!!!!

  25. samantha

    been very ill- could i have lupus?
    for the last year ive been really sick. ive had numerous test done and been put on a hole mess load of medications. but nothing seems to help and im just getting worse. im in constant pain and cant hardly eat. my entire stomach hurts and my food doesnt digest and i have no bowel movements. it hurts to empty my bladder and my lower back feels like its breaking. mostly i get pains under my ribs and on my sides. but i also get shooting pains every where at different times.

    well ive been doing a lot of research on my own because my doctors cant seem to find out whats wrong with me. and i came across lupus. all i know about it now is its an auto- immune disease and it can affect your organs and make you lose function of them. so i wondering if i could have it. i dont have a history of any gastric problems in my family except acid reflex but ive been tested for that.

    what are the symptoms of lupus? how do you test for lupus? how do you treat lupus?

    i just what to know as much as possible about lupus or any other illness that can cause my symptoms. if any one could give me some information i would really appreciate it!

    thank you

    -sam

  26. Ern

    Ive had lupus symptoms for 4 months..?
    Im 21 and had my third child 4 months ago. About a week and a half after she was born i began developing what i though were allergies-stucfy/runny nose all day and night and headaches. About a week after that I began getting these bumps on my eye lash lines. I thoufht they were styles-they would last a week causing watery eyes, red eyes, itching, pain and slme times inability to epen eyes because the light hurt too bad. This remained along with the “allergies”. When one stye left another one came… though the severity of began to decrease. Teh the extreme fatigue began to set.in.. I can sleep 10 hours a night and still fall asleep just sitting at the table writing and i nap twice a day (very understanding husband just watches the kids and helps with housework). This was immediately followed by bad knee joint pain and hair loss.. i cant wear my hair down anymore because hair ends up in food, all over my clothes, all over my things ect… and to top it all off ive been getting headaches daily. Not severe but constant and i never got head aches before. I am also getting bruises up and down my legs and arms-either from slight toughing or i dont know the origin. Could thos be lupus? I dont have insurance right now nor a lot of money tp go see a specialist with. How is lupus diagnosed?

  27. Anama

    It is an autoimmune disease, and to explain it here would be silly when there are literally thousands of sites dedicated to lupus. There is a search engine on yahoo! ,please try using that.
    Suggestions:
    Lupus cdc
    Lupus foundations

  28. britters *

    What is causing all these symptoms?
    I have been having health problems for the last few years and I’m determined to find out what is wrong! I am an 18 year old white female who lives in new york.. if any of that makes a difference.

    Some of my symptoms include: increased fatigue, I can sleep for hours and still feel tired. For the past 3 years I have gotten a rash on my neck and chest that is not inflamed but warm and comes and goes at all sorts of times and have heat sensitivity to that area and sometimes chest pain. A few months ago I had an infection in my arm pit and was told it was cellulitis and was given an antibiotic, since then I have had frequent pain in both of my arm pits and it seems to be swollen at times. For the past 2 years or so, I produce breast milk in my left breast but I have never been pregnant, sometimes it is a clear liquid that comes out and sometimes a milky liquid. About a month ago I had to go to the emergency room because both of my breasts were swollen and it was very very painful but they sent me home without telling me an explanation to what it was and it all went away a few days later. For as long as I can remember I have had joint and muscle pain all over my body, mainly the upper back and neck. In january of 2010 I went to the hospital because my back, both lower and upper, hurt so bad that I could barely move. I had high blood pressure and slight chest pain but once again they weren’t aware of the cause so I was sent home with some tylenol. I have noticed that when I get many of these symptoms I get very emotional, either very sensitive or angered easily. Recently I have been getting twitches in my hands, mainly in the thumb area. I have noticed that my concentration isn’t as good as it used to be, I am very anxious and impatient.

    Doctors have gave me some ideas of what it may be but nothing was ever diagnosed. They suggested: anxiety disorder, lupus, thyroid disease, tumor on the pituitary gland, breast cancer, skin cancer, rheumatoid arthritis, graves disease and I think thats about it.

    Someone please help before it gets worse!!!

    1. Tuning In...

      Sounds like Cryoglobulinemia.

      Symptoms vary depending on the type of cryoglobulinemia and the organs that are affected. In general, symptoms may include:

      Difficulty breathing
      Fatigue
      Glomerulonephritis
      Joint pain
      Muscle pain
      Purpura
      Raynaud’s phenomenon
      Skin death
      Skin ulceration

      And many more others as it’s is a syndrome with many possible symptoms

      The doctor will perform a physical exam. There may be signs of liver and spleen swelling. Tests for cryoglobulinemia include:

      Complete blood count (CBC)
      Complement assay — numbers will be low
      Cryoglobulin test — may show presence of cryoglobulins
      Liver function tests — may be high
      Rheumatoid factor — positive in types II and III
      Skin biopsy
      Urinalysis — may show blood in the urine if the kidneys are affected

      Other tests may include:

      Angiogram
      Chest x-ray
      ESR
      Hepatitis C test
      Nerve conduction tests, if the person has weakness in the arms or legs
      Protein electrophoresis – blood

      As there are too many complications, anxiety builds up within yourself which is why doctors may think you have anxiety disorder or as suggested by the other answer of having neuro related illness.

      This blood disorder is very difficult to be diagnosed and treated. It won’t kill you but you’ll have to take constant medication so as to contain it. Many doctors are baffled by it and seriously many don’t even know about this blood disorder.

      Please suggest to your doctors to try those tests on your blood. I have a hunch I am right.

      Take care and good luck.

  29. MJ H

    Do you know someone with Systemic Lupus?
    Lupus is an auto-immune disease that causes inflammation throughout the body. Your own immune system attacks your internal organs such as kidneys, liver, heart, lungs, and central nervous system. It also attacks your joints causing arthritis like pain. Other symptoms include butterfly shaped rash covering the cheeks and nose, hair loss, extreme fatigue, anemia or blood clotting issues, pleurisy, and ulceration in the nose and mouth.

  30. Liz

    What physical symptoms can flea bites cause?
    Ive been having knee/leg pain also arm pain. Basically joint pain. I seen a rhematologist today and my doctor took arthritis tests, lupus, and some others, all negative. He noticed flea bites that i have from about two months ago. Their everywhere! Tons! He said that infections from other people or animals can cause these symptoms, and that they go away in about 6 weeks. Has anyone else ever had this? Or heard about it? This is new to me. I hope that’s all it is. I don’t want arthritis!

    Thanks..

  31. Jenell

    Will Discoid Lupus give you symptoms?
    For years I have suffered from extreme fatigue, constant headaches, anxiety, depression, constantly being sick. I found out last week that I have discoid lupus via skin biopsy. Could this be the cause of my troubles? I got blood take to test for SLE and I don’t have that.

    Thank you!
    will discoid then only affect the skin?

  32. •Megan*Nicole•

    Anyone have any information on Lupus? (Very Important)?
    Like who normally gets it.. Causes.. Symptoms..
    People have said they thought I might have it, and I’m scared because I know nothing about it.
    When I was having problems with my ankle a Orthopedic doctor even said I could possibly have Lupus

  33. J.prettygirl.rock

    Diabetes? Lupus? MS? What’s causing all of these symptoms and pain? Started with a simple hairline fracture?
    I hairline fractured my Left arm Radius about 3 weeks ago. At first I thought it was a sprain or bruise so I didn’t have it looked at immediately. My hand had been tingling and feeling numb and as the pain increased my fingers got colder and started turning blue, so I went to the dr. They confirmed it was a hairline fracture, it was affecting vascularity and had injured the radial nerve. I have developed wrist and finger “drop” (Radial Nerve Palsy) since the injury, but I have also been having a lot of other symptoms appear. I have peripheral neuropathy in my other extremities and I’ve been very sensitive to heat and cold. My hands will get ice cold and discolored for no reason. I’ve been having very dry, cracking, peeling and flaking skin, especially on my hands, feet and face. I don’t know if it’s fluid retention or just swelling but from the waist down there is excessive swelling and is painful in my feet and ankles. And over the last 3 days black spots have been popping up all over my chest, torso, back and arms with only a few on my face or legs. They look like black pimples under the surface or moles almost, they seem to have a “root” and only retract back into the skin when squeezed. What could be causing all of this?? I know nerve damage takes time to heal but this feels like more than just nerve damage. And i can’t find any other skin conditions that look like what I have. Any help, ideas, suggestions are very appreciated!

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